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Disability Gulag

Picture of Harriet McBryde Johnson

Harriet McBryde Johnson

Courtesy of Susan K. Dunn


On this page you will find the link to the full article, The Disability Gulag, (c) 2003 Harriet McBryde Johnson (distributed by NY Times Features Syndicate).The article highlights the dilemma faced by many people with disabilities who are arbitrarily and needlessly placed in institutions. You will also find links to resources that will assist people with disabilities who want to live where, how, and with whom they choose.

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DISABILITY GULAG

In this article, attorney Harriet McBryde Johnson explains that some two million Americans with disabilities are confined in nursing homes, care facilities, and other institutions not because that is what they want or need, but because that's what the government will pay for. In describing this system, she borrows the word "gulag," which describes the Soviet Union's former network of prison camps where millions were forcibly isolated from their families and communities. There are very big differences between the two "gulags." However, by highlighting the similarities, using stories and argument, Johnson gives fuel to the disability rights movement's demand for services that will enable all of us to live where, how, and with whom we choose. To view full text of article CLICK HERE (Reprinted by permission).

To request permission to reprint, click here to email the NY Times Features Syndicate, stating full particulars about the nature and purpose of the reprint. Inquiries are welcomed from non-profit advocacy organizations that wish to distribute the article at no charge in support of their work.

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Legal Questions/Advice

Should you have any legal questions regarding your rights to live where you want to live and whom provides you those services, please contact P&A by email or call us in-state, toll free at 1.866.275.7273. Should you have legal questions and you live in a state besides South Carolina, please contact your state Protection and Advocacy System. Click here to get in touch with your P&A.

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Resources

Listing of Independent Living Centers (ILC's)

ADAPT WebPage

Medicaid Community Attendant Services and Supports Act (MiCASSA)

Olmstead Decision - Bazelon Center for Mental Health Law

bullet Fact Sheets